Have you ever met anyone with Down Syndrome? If it wasn’t for the work of the Special Olympics or the warm-hearted cheerleader on GLEE would you even know what it looked like?

I think many of us would agree that fear comes from the unknown and being in small town USA, we are insulated from a lot of unknowns, like genetic disorders such as Down Syndrome, we don’t understand.

But did you know here in Bay County there are as many as 7 new families with children born with Down Syndrome?
On a national level one in every 733 babies in the United States is born with it, making it the most common genetic condition. About 6,000 babies are born with Down’s in the U.S every year.

But how would you know that? I didn’t until I spoke to a couple mother’s whose lives were affected….for the better, by the way. One woman, Shannon, whose family frequently visits our beaches, and hopes to call it home some day, shared with me about her experience very candidly.

 

 

 

After giving birth she looked at her baby Lucas, who is now the absolute light unto her path, and she knew before the doctor told her. She was terrified, she broke down into a “crying, snotty mess” she said. She realized that as a mother, one of her primal fears were ignited, something was “wrong” with her baby. But “wrong” turned out to be just “right” and the biggest blessing of her and her husband’s lifetime.

After the hormonal rush of pregnancy had subsided and she was able to reflect on her gutteral reaction she concluded most of her horror was based on pure ignorance. She had never met anyone with Down Syndrome before, she didn’t know anything about it, how was she going to take care of our baby? Isn’t that every mother’s fear that we will not somehow be equipped, i.e, good enough to take care of our children?

As I spoke with Shannon and she shared her story, her candor touched me, I thanked her for it. She simply said…”you know, your story is your story.”

Those words hit me in the face and I hope they leave a mark on yours. Your story is your story and it can be as sad or scary or beautiful as you want it to be. But before it is written, when it is still in the beginning and you don’t know what is going to happen…it can be pretty scary.

But it doesn’t have to be, you can reach out and find people to talk to, learn more about Aspergers and Autism and Down Syndrome and all of those things that terrify us because we don’t know any better. For Shannon, she read the blog by Kelle Hampton, a mother she not only connected to, but made her realize what an amazing gift she had been given.

Thankfully there are organizations that raise awareness of these issues that affect so many of new mother’s today.  October happens to be Down Syndrome Awareness Month.

If you want to learn more about Down Syndrome and have a fun, family friendly day outside, you are in luck for this Saturday, October 20th is the Annual Buddy Walk put on by Acton Up with Downs at Aaron Bessant Park next to Pier Park.

There will be lots to do at this event..Music…Food..
Children’s games and crafts…entertainment for all!
Dr. Shane of WPAP will be the MC and the Parrots Club will play music. Prosperity Bank will be keep our bellies full with hot dogs and hamburgers for all.

To find out more about this event, go to http://www.actonupwithdowns.org/ or just show up at Aaron Bessant Park this Saturday, October 20th at 9 am.

As one local parent put it….”Come out and learn more about people with Down Syndrome…and find out that we are all more alike than different.”